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Rare Diseases Day: Show your support for Rare Diseases

 

 

In the context of the International Rare Diseases Day, the Portuguese Alliance of Rare Disease Associations, in collaboration with Instituto de Inovação e Investigação em Saúde (i3S) and Instituto Nacional de Saúde Doutor Ricardo Jorge (INSA), organizes the event "Show your support for Rare Diseases", held on February 27th at INSA, in Lisbon.

The event aims to disclosure rare diseases’ research and to promote debate among the various interlocutors of rare diseases, namely patients, on the model of patient and associations’ representativeness in Portugal.

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.